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Adrenomyeloneuropathy (AMN) is an inherited metabolic disorder characterized by the degeneration of the adrenal gland

Morgellons — Rare Genomics Institute DONATE NOW Rare Genomics Institute About What is Rare Genomics Our Mission Rare Disease Facts Partners The RG Team Board of Directors Privacy Statement Patient Resources Amplify Hope FAQ Podcasts Patient Success Stories Rare Diseases List Education Rare-Ed Infographics Programs How We Help Patients RG Patient Research Services RareShare RareWear iHOPE For Researchers BeHEARD Competition Publications Support Why Donate? Amazon Smile Join Us Contact Us Opportunities Follow us! 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News & Events/Rare Disease DayNews, Events, and BlogsPress ReleasesNewsletter Empowering Patients Today, Accelerating Cures Tomorrow Morgellons Adrenomyeloneuropathy (AMN) is an inherited metabolic disorder characterized by the degeneration of the adrenal gland About/What is Rare GenomicsOur MissionRare Disease FactsPartnersThe RG TeamBoard of DirectorsPrivacy Statement Patient Resources/Amplify HopeFAQPodcastsPatient Success StoriesRare Diseases ListEducationRare-Ed Infographics Programs/How We Help PatientsRG Patient Research ServicesRareShareRareWeariHOPE For Researchers/BeHEARD CompetitionPublications Support/Why Donate?Amazon Smile Join Us/Contact UsOpportunitiesFollow us! News & Events/Rare Disease DayNews, Events, and BlogsPress ReleasesNewsletter Morgellons Join the Morgellons Community on RareShare What is Morgellons?Morgellons is a multi-symptom disease characterized by the presence of colored fibers under the skin. Symptoms include crawling, biting, and stinging sensations on the skin and slow- or non-healing skin lesions (sores). The exact cause is unknown, and it’s often misdiagnosed as delusional parasitosis or obsessive picking disorder.Some studies suggest people are at a higher risk for Morgellons if they were exposed to or bitten by a tick, have Lyme disease, or have hypothyroidism (an underactive thyroid).Other conditions have been reported in people with Morgellons, including fatigue, joint pain, brain fog, anxiety, depression, fibromyalgia, and sleep disorders.What is the prevalence of Morgellons?According to a 2012 study by the U.S. Centers for Disease Control and Prevention (CDC), the prevalence of Morgellons was 3.65 cases per 100,000 participants.How is Morgellons diagnosed?Morgellons may be hard to diagnose. A doctor may suspect Morgellons if someone has itchy skin with lesions that don’t heal. They may order blood tests or a skin biopsy to help make a diagnosis. If fibers are found in the skin lesions, they may be sent to a laboratory for analysis.Is there any specific gene/pathway in Morgellons that has been identified?No.How is Morgellons treated?Treatment depends on which symptoms someone has. For example, doctors may prescribe medication for anxiety, depression, a thyroid disorder, or skin lesions.Are there any clinical trials underway for Morgellons?No, not at this time. How can RareShare be helpful to Morgellons patients and families?The Morgellons RareShare community has 37 members. There are currently nine active discussions underway, helping to connect patients, health workers, caregivers, and families interested in Morgellons and providing them continual access to community resources.RareShare, MGCI Cancer Society and RG Chapter   Contact Us4859 West Slauson Avenue #573 Los Angeles, CA 90056.Rare Genomics Institute is a 501(c)(3) | FEIN : 45-3624709© 2021 Rare Genomics Institute. 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